Rumeysa Gelgi, the tallest woman in the world at 7ft 0.7in, and Jyoti Amge, the shortest woman in the world at just 2ft 0.7in, came together to observe Guinness World Records (GWR) Day 2024 over an afternoon tea at London's Savoy Hotel.
While vastly different in stature, both Jyoti and Rumeysa, each live with rare medical conditions that significantly shape their lives. Jyoti Amge, recognized as the shortest woman in the world, has primordial dwarfism. While Rumeysa Gelgi, has Weaver syndrome, a genetic condition that causes rapid growth and developmental abnormalities. It is exceedingly rare, with fewer than 50 known cases worldwide.
Rumeysa Gelgi and her struggle with Weaver syndrome
Born in Safranbolu, Turkey, Rumeysa's extraordinary life began with an equally extraordinary birth. In a conversation with her sister, Rumeysa revealed that she was born a natural, vaginal birth, despite being a whopping 23.2 inches long and weighing 5.9 kg as a newborn.
This fascinating detail was shared in a short video by Guinness World Records, where Rumeysa humorously noted that her delivery was a bold move by her doctor while acknowledging the potential risks involved:
“It was definitely a mistake—I should have been a C-section,”
Weaver Syndrome is at the core of Rumeysa Gelgi’s remarkable journey. This rare genetic disorder has significantly influenced her life, causing accelerated growth and advanced bone development.
Despite requiring the use of a wheelchair and occasional assistance, she has become a passionate advocate for those with similar challenges.
In an interview with The Guardian, she revealed that traveling is no small feat for her. Her height and medical needs require special accommodations, but her determination to explore the world remains unshaken. In 2022, Rumeysa made headlines for her first flight, where six airplane seats were converted into a stretcher for her comfort.
In the interview, she recalls her childhood days were particularly rough as she was homeschooled and felt like a child trapped in an adult's body. She also shared:
"I often need to adjust things due to my height. Everything has to be altered to suit me, which can be very hard, but there are positives, too.
I usually buy clothes from brands specialising in plus-size clothing, then alter them. I’ll find a dress that I like and then get it turned into a top. Bottoms always have to be tailored. It gives me a chance to be creative."
Now based in California to advance her tech career, Rumeysa is breaking barriers not only in her personal life but also professionally. As a web developer, she’s chasing her dreams while advocating for others with rare conditions.
In the 2023 interview with The Guardian, Gelgi had also mentioned that:
"I’ve achieved my dream of travelling on a plane, I can’t wait to see what is in store for me next. I’m hoping a trip to the UK will be on the cards soon, too."
With her recent trip to London to celebrate GWR Day 2024, we are sure another one of Rumeysa's dreams has been ticked off her checklist!
More about Weaver's Syndrome that Rumeysa Gelgi suffers from
Weaver Syndrome is a rare genetic condition that causes people to grow very quickly and have certain specific physical features, like a larger-than-usual body size and unique facial traits. It also leads to bone and joint problems, such as a curved spine and stiff joints. People with this condition might have some developmental delays and may need extra help with everyday activities.
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There is no cure for Weaver Syndrome as it is a genetic condition. However, treatment typically focuses on managing symptoms. This may include physical therapy to help with joint stiffness and mobility issues, surgeries to correct skeletal abnormalities like spinal curvature, and other supportive care to address any developmental or medical challenges.
However, Rumeysa Gelgi is a true example of how people with Weaver syndrome can lead fulfilling lives with proper care.
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